Progressive Familial Intrahepatic Cholestasis Advocacy & Resource Network
Review website disclaimers and medical content
Help ensure that an important patient education tool is legally compliant.
Posted February 12, 2024
Work & Deliverables
We are looking for a lawyer to review website content and disclaimers before they are published to ensure compliance with legal and ethical regulations as applicable. We specifically want to make sure we are providing sufficient disclaimers on the website that we are not prescribing or suggesting treatments.PFIC Network is a rare disease patient advocacy organization representing PFIC and related diseases. Our organization is developing a website for PFIC patients that contains clinical information about different treatments available to PFIC patients and also provides summarized info about patients’ experiences with those treatments. Our goal with this website is to provide a helpful information tool. It will also be interactive - we are embedding a survey in the website that will ask patients questions about their treatment experiences. We will use survey data to produce summaries of patients’ experiences to further augment the website with info.
Progressive Familial Intrahepatic Cholestasis Advocacy & Resource Network
Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis (PFIC). PFIC Network was founded in 2018 by 3 mothers of PFIC patients. We strive to equip patients and families with the educational and support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While PFIC Network is based in the United States, we serve a global population and provide resources for patients and families all over the world.
Progressive Familial Intrahepatic Cholestasis Advocacy & Resource Network
Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis (PFIC). PFIC Network was founded in 2018 by 3 mothers of PFIC patients. We strive to equip patients and families with the educational and support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While PFIC Network is based in the United States, we serve a global population and provide resources for patients and families all over the world.