Cure HHT
Amendment to CHORUS Registry Data Transfer and Use Agreement
Important outcomes registry that will help accelerate research toward a cure...
Lawyers, we need you! Volunteer to support the rare disease community.
Volunteer hereRare disease is anything but rare. As many as 7,000 rare diseases affect 300 million people globally. Yet worldwide, patients are meeting these challenges head-on. Rare disease research often involves navigating complex regulatory landscapes. Lawyers are needed to ensure compliance with all relevant regulations and laws governing research, clinical trials, and the eventual dissemination of treatments.
WTA lawyers are working closely with patient-led organizations in the Rare As One Network. Partners include: