KCNT1 Epilepsy Foundation
Privacy Policy Review for Rare Disease Nonprofit
Help us comply with CPRA, GDPR, etc
Posted April 28, 2025
Background & Context
We collect data from people around the world who visit our websites through forms and will be adding non-identifiable cookies for website performance. We know we need to be transparent and have ways to remove their data if requested. Need legal counsel to review our published policy and make necessary enhancements. We strive to be HIPAAA compliant as well.
Immediate Problem
Review/update privacy policy and tell us what processes we need to have in place as part of the policy.
Work & Deliverables
Review current privacy policy and make suggested changes to document and suggested processes in place
Preparation Phase
- Review current policy and website, and understand what/why we collect.
Collaboration Phase
- Meet to go over changes
Wrap Up
- Share optional or future/anticipated changes expected in the industry.
KCNT1 Epilepsy Foundation
We accelerate the development of treatments by funding research and fostering collaborations for a rare pediatric epilepsy, support families in their journey, and educate clinicians.
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KCNT1 Epilepsy Foundation
We accelerate the development of treatments by funding research and fostering collaborations for a rare pediatric epilepsy, support families in their journey, and educate clinicians.