A Foundation Building Strength for Nemaline Myopathy (AFBS)
Brazil Natural History Study Agreement for Rare Disease Research
Ensure legal integrity of Brazil-based research agreement between nonprofit and institute
Posted January 28, 2025
Work & Deliverables
We need a lawyer to review a Natural History Study legal document to ensure it protects the interests of all parties involved, including our nonprofit organization and study participants. Looking for feedback, suggested necessary revisions, and confirmation that the document is clear, comprehensive, and enforceable.
A Foundation Building Strength for Nemaline Myopathy (AFBS)
Our mission is to find treatments for Nemaline Myopathy, a rare muscle disease affecting all skeletal muscles. AFBS works to address issues for our NM families from all angles, including advancing research, providing information about care, offering family support groups and ways to connect, and creating opportunities for in-person interaction and education at conferences.
A Foundation Building Strength for Nemaline Myopathy (AFBS)
Our mission is to find treatments for Nemaline Myopathy, a rare muscle disease affecting all skeletal muscles. AFBS works to address issues for our NM families from all angles, including advancing research, providing information about care, offering family support groups and ways to connect, and creating opportunities for in-person interaction and education at conferences.