Pediatric Epilepsy Research Consortium
PERC Conflict of Interest Policy
Support PERC in creating partnerships with industry to achieve financial sustainability
Posted April 19, 2024
Background & Context
The Pediatric Epilepsy Research Consortium is a newly formed 501c 3 nonprofit organization (10/23) and we are in the process of creating a sustainable and strong infrastructure. Creating a solid and simple conflict of interest policy will allow us to move forward confidently to secure financial agreements with potential industry partners.
Immediate Problem
Merging two draft Conflict of Interest policies into one document.
Work & Deliverables
We have developed 2 conflict of interest policies that need to be merged into one document that can be used by the entire organization. It needs to be consistent with COI policies of our sister organization, the American Epilepsy Society, while meeting our own unique needs.
Preparation Phase
- Meet with the PERC Executive Director
- Review the current COI policies- 2
Collaboration Phase
- Understand the needs of PERC for the use of this policy
Wrap Up
- provide one COI policy for PERC
Pediatric Epilepsy Research Consortium
Our mission is to provide a network and infrastructure to facilitate collegial, collaborative, practice-changing research that will provide answers needed to improve the care of children with epilepsy. Our consortium consists of more than 75 U.S. pediatric epilepsy centers and over 350 pediatric epileptologists, neuropsychologists, and researchers. Our vision is a world in which all children with epilepsy benefit from the most recent advances in scientific knowledge and technology, regardless of geographic or economic resources. Through large multicenter registries, as well as multicenter retrospective and prospective analyses, we hope to identify preferred diagnostic evaluations and treatments for specific epilepsy syndromes, etiologies, and comorbidities. Our research is accomplished within our 13 active Special Interest Groups, or SIGs, and led by a Board of Directors of pediatric epileptologists with the support of our Executive Director. Our long term goal is to be recognized as the “gold standard” for pediatric epilepsy care and research.
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Pediatric Epilepsy Research Consortium
Our mission is to provide a network and infrastructure to facilitate collegial, collaborative, practice-changing research that will provide answers needed to improve the care of children with epilepsy. Our consortium consists of more than 75 U.S. pediatric epilepsy centers and over 350 pediatric epileptologists, neuropsychologists, and researchers. Our vision is a world in which all children with epilepsy benefit from the most recent advances in scientific knowledge and technology, regardless of geographic or economic resources. Through large multicenter registries, as well as multicenter retrospective and prospective analyses, we hope to identify preferred diagnostic evaluations and treatments for specific epilepsy syndromes, etiologies, and comorbidities. Our research is accomplished within our 13 active Special Interest Groups, or SIGs, and led by a Board of Directors of pediatric epileptologists with the support of our Executive Director. Our long term goal is to be recognized as the “gold standard” for pediatric epilepsy care and research.